| A Physician-Completed Digital Tool for Evaluating Disease Progression (Multiple Sclerosis Progression Discussion Tool): Validation Study T Ziemssen, D Piani-Meier, B Bennett, C Johnson, K Tinsley, A Trigg, ... Journal of Medical Internet Research 22 (2), e16932, 2020 | 50 | 2020 |
| Psychometric evaluation of a patient-reported outcome measure in pancreatic exocrine insufficiency (PEI) CD Johnson, N Williamson, G Janssen-van Solingen, R Arbuckle, ... Pancreatology 19 (1), 182-190, 2019 | 43 | 2019 |
| Social Media Listening to Understand the Lived Experience of Presbyopia: Systematic Search and Content Analysis Study JS Wolffsohn, C Leteneux-Pantais, S Chiva-Razavi, S Bentley, C Johnson, ... Journal of Medical Internet Research 22 (9), e18306, 2020 | 38 | 2020 |
| Patient-reported outcome measures in presbyopia: a literature review G Sharma, S Chiva-Razavi, D Viriato, C Naujoks, F Patalano, S Bentley, ... BMJ open ophthalmology 5 (1), e000453, 2020 | 20 | 2020 |
| Patient-Centered Insights on Treatment Decision Making and Living with Acute Myeloid Leukemia and Other Hematologic Cancers R Crawford, K Sully, R Conroy, C Johnson, L Doward, T Bell, V Welch, ... The Patient-Patient-Centered Outcomes Research 13 (1), 83-102, 2020 | 18 | 2020 |
| Meaningful changes in what matters to individuals with vitiligo: content validity and meaningful change thresholds of the vitiligo area scoring index (VASI) H Kitchen, KW Wyrwich, C Carmichael, LS Deal, T Lukic, T Al-Zubeidi, ... Dermatology and therapy 12 (7), 1623-1637, 2022 | 11 | 2022 |
| Understanding the visual function symptoms and associated functional impacts of phakic presbyopia S Bentley, A Findley, S Chiva-Razavi, C Naujoks, F Patalano, C Johnson, ... Journal of Patient-Reported Outcomes 5, 1-15, 2021 | 8 | 2021 |
| Evaluation of the content validity of patient-reported outcome (PRO) instruments developed for use with individuals with phakic presbyopia, including the Near Activity Visual … S Bentley, A Findley, S Chiva-Razavi, C Naujoks, F Patalano, C Johnson, ... Journal of patient-reported outcomes 5, 1-16, 2021 | 7 | 2021 |
| Content Validity of a Willingness to Quit Tool for Use with Current Smokers in Clinical Practice CL Baker, M Bruno, L Grant, C Johnson, B Bennett, E Brohan, B Emir Advances in Therapy 34, 2295-2306, 2017 | 6 | 2017 |
| Validation of the Scoring Algorithm for a Novel Integrative Secondary Progressive Multiple Sclerosis (SPMS) Screening Tool (P3. 2-011) T Ziemssen, DP Meier, B Bennett, C Johnson, K Tinsley, A Trigg, F Dahlke, ... Neurology 92 (15 Supplement), 2019 | 5 | 2019 |
| Key measurement concepts and appropriate clinical outcome assessments in pediatric achondroplasia clinical trials NVJ Aldhouse, H Kitchen, C Johnson, C Marshall, H Pegram, S Pease, ... Orphanet Journal of Rare Diseases 17 (1), 182, 2022 | 3 | 2022 |
| Qualitative evaluation of the symptoms and quality of life impacts of long-chain fatty acid oxidation disorders R Williams-Hall, K Tinsley, E Kruger, C Johnson, A Bowden, T Cimms, ... Therapeutic Advances in Endocrinology and Metabolism 13, 20420188211065655, 2022 | 3 | 2022 |
| Treatment Decision Making in AML: Factors of Importance to Clinicians, AML Patients and Their Family TW LeBlanc, RB Walter, L Hernandez-Aldama, K Sully, TJ Bell, ... Blood, The Journal of the American Society of Hematology 134 (Supplement_1 …, 2019 | 3 | 2019 |
| A Qualitative Study to Develop and Evaluate the Content Validity of the Vitiligo Patient Priority Outcome (ViPPO) Measures H Kitchen, K Gandhi, C Carmichael, KW Wyrwich, T Lukic, T Al-Zubeidi, ... Dermatology and therapy 12 (8), 1907-1924, 2022 | 2 | 2022 |
| Gaucher disease (GD)-specific patient-reported outcome (PRO) measures for clinical monitoring and for clinical trials D Elstein, M Klemen, C Panter, N Bonner, C Johnson, A Zimran Molecular Genetics and Metabolism 126 (2), S52, 2019 | 2 | 2019 |
| Qualitative research to characterize patients with galactosialidosis T Cimms, QA Ali, S Kilgariff, C Johnson, R Arbuckle, B Malkus, A Schatz, ... Molecular Genetics and Metabolism 123 (2), S32-S33, 2018 | 2 | 2018 |
| A qualitative study to examine meaningful change in physical function associated with weight-loss JL Poon, C Marshall, C Johnson, HC Pegram, M Hunter, H Kan, ... Quality of Life Research 32 (5), 1329-1340, 2023 | 1 | 2023 |
| PSAT097 Patient Preference Research: Preferred Adjunctive Medication Attributes of Adult Patients with Classic Congenital Adrenal Hyperplasia R Manahan, J Macey, M Farrar, C O’Donoghue, S Knight, C Carmichael, ... Journal of the Endocrine Society 6 (Supplement_1), A118-A118, 2022 | 1 | 2022 |
| POSA353 Conceptual Models of the Patient Experience of Duchenne Muscular Dystrophy Constructed from a Qualitative Interview Study with Caregivers J Iff, S McKee, C Johnson, C McNeill, I Sehinovych, F Muntoni, ... Value in Health 25 (1), S218, 2022 | 1 | 2022 |
| Ethical considerations when accessing, analyzing, and reporting social media data C Johnson, H Kitchen, C Marshall, J Macey, NVJ Aldhouse, T Al-Zubeidi, ... QUALITY OF LIFE RESEARCH 29 (SUPPL 1), S135-S135, 2020 | 1 | 2020 |
Helen KitchenClarivateVerified email at clarivate.com
