Achieving child-centred care for children and young people with life-limiting and life-threatening conditions—a qualitative interview study L Coombes, D Braybrook, A Roach, H Scott, D Harðardóttir, K Bristowe, ... European journal of pediatrics 181 (10), 3739-3752, 2022 | 26 | 2022 |
Preliminary psychometric scale development using the mixed methods Delphi technique Y Dragostinov, D Harðardóttir, PE McKenna, DA Robb, B Nesset, ... Methods in Psychology 7, 100103, 2022 | 9 | 2022 |
Spiritual, religious, and existential concerns of children and young people with life-limiting and life-threatening conditions: A qualitative interview study HM Scott, L Coombes, D Braybrook, A Roach, D Harðardóttir, K Bristowe, ... Palliative medicine 37 (6), 856-865, 2023 | 8 | 2023 |
COVID-19: impact on pediatric palliative care HM Scott, L Coombes, D Braybrook, A Roach, D Harðardóttir, K Bristowe, ... Journal of pain and symptom management 64 (1), e1-e5, 2022 | 7 | 2022 |
Design and Administration of Patient-Centred Outcome Measures: the perspectives of children and young people with life-limiting or life-threatening conditions and their family … L Coombes, D Harðardóttir, D Braybrook, A Roach, H Scott, K Bristowe, ... The Patient-Patient-Centered Outcomes Research 16 (5), 473-483, 2023 | 4 | 2023 |
Implementation of child-centred outcome measures in routine paediatric healthcare practice: a systematic review HM Scott, D Braybrook, D Harðardóttir, C Ellis-Smith, R Harding Health and Quality of Life Outcomes 21 (1), 63, 2023 | 4 | 2023 |
Achieving consensus on priority items for paediatric palliative care outcome measurement: Results from a modified Delphi survey, engagement with a children’s research … L Coombes, D Harðardóttir, D Braybrook, HM Scott, K Bristowe, ... Palliative Medicine 37 (10), 1509-1519, 2023 | 2 | 2023 |
230 Implementing child-centred outcome measures into routine practice: A systematic review HM Scott, D Braybrook, C Ellis-Smith, D Harðardóttir, K Bristowe, ... Archives of Disease in Childhood 108 (Suppl 2), A319-A319, 2023 | 1 | 2023 |
The meaning of ‘normality’among children and young people with life-limiting or life threatening conditions D Braybrook, L Coombes, A Roach, D Harðardóttir, H Scott, ... 5th Maruzza International Congress on Paediatric Palliative Care, 2022 | 1 | 2022 |
Prevalence of Life-Limiting and Life-Threatening Illness and Associated Palliative Care Needs Among Hospital Inpatients in Sudan N Gafer, M Marhoom, S Siddig, H Ali, M Mursi, D Harðardóttir, R Harding Journal of pain and symptom management 63 (1), 124-130, 2022 | 1 | 2022 |
Cognitive testing of the Children’s Palliative Outcome Scale (C-POS) with children, young people and their parents/carers L Coombes, D Braybrook, D Harðardóttir, HM Scott, K Bristowe, ... Palliative Medicine, 02692163241248735, 2024 | | 2024 |
What are the anticipated benefits, risks, barriers and facilitators to implementing person-centred outcome measures into routine care for children and young people with life … HM Scott, L Coombes, D Braybrook, D Harðardóttir, A Roach, K Bristowe, ... Palliative Medicine 38 (4), 471-484, 2024 | | 2024 |
‘My life is a mess but I cope’: An analysis of the language children and young people use to describe their own life-limiting or life-threatening condition K Bristowe, D Braybrook, HM Scott, L Coombes, D Harðardóttir, A Roach, ... Palliative Medicine 38 (3), 379-388, 2024 | | 2024 |
605 What constitutes ‘good quality care’from the perspectives of children and young people with life-limiting and life-threatening conditions? D Braybrook, L Coombes, HM Scott, D Harðardóttir, K Bristowe, L Fraser, ... Archives of Disease in Childhood 108 (Suppl 2), A327-A327, 2023 | | 2023 |
Knowledge, attitudes and beliefs about paediatric palliative care HM Scott, L Coombes, D Braybrook, D Harðardóttir, I Gaczkowska, ... Annals of Palliative Medicine 12 (1), 102-112, 2023 | | 2023 |
Applying the Delphi Method as an Important Step in Psychometric Scale Development Y Dragostinov, D Harðardóttir, P McKenna, D Robb, B Nesset, M Ahmad, ... PsyArXiv, 2022 | | 2022 |
Challenges and Incentives for Integrating Person-Centred Outcome Measures Into Routine Paediatric Palliative Care: Health, Social Care and Commissioner Perspectives H Scott, L Coombes, D Braybrook, A Roach, D Harðardóttir, K Bristowe, ... 12th World Research Congress of the European Association for Palliative Care, 2022 | | 2022 |
The Impact of COVID-19 on Palliative Care for Children Within the UK H Scott, L Coombes, D Braybrook, A Roach, D Harðardóttir, K Bristowe, ... 12th World Research Congress of the European Association for Palliative Care, 2022 | | 2022 |
Methods in Psychology Y Dragostinov, D Harðardóttir, PE McKenna, DA Robb, B Nesset, ... | | |