Predictors of narcolepsy and hypersomnia due to medical disorder in pediatric craniopharyngioma BN Mandrell, K LaRosa, D Hancock, M Caples, A Sykes, Z Lu, MS Wise, ... Journal of neuro-oncology 148, 307-316, 2020 | 22 | 2020 |
Knowledge is power: benefits, risks, hopes, and decision-making reported by parents consenting to next-generation sequencing for children and adolescents with cancer BN Mandrell, JS Gattuso, M Pritchard, M Caples, KMH Sharp, L Harrison, ... Seminars in oncology nursing 37 (3), 151167, 2021 | 15 | 2021 |
Actigraphy versus polysomnography to measure sleep in youth treated for craniopharyngioma K Niel, KN LaRosa, KL Klages, TE Merchant, MS Wise, SM Witcraft, ... Behavioral sleep medicine 18 (5), 589-597, 2020 | 15 | 2020 |
Impact of sleep, neuroendocrine, and executive function on health‐related quality of life in young people with craniopharyngioma KA Niel, KL Klages, TE Merchant, MS Wise, D Hancock, M Caples, ... Developmental Medicine & Child Neurology 63 (8), 984-990, 2021 | 9 | 2021 |
Parental Preferences Surrounding Timing and Content of Consent Conversations for Clinical Germline Genetic Testing Following a Child's New Cancer Diagnosis BN Mandrell, LM Johnson, M Caples, J Gattuso, JL Maciaszek, ... JCO Precision Oncology 6, e2200323, 2022 | 4 | 2022 |
Gene therapy in sickle cell disease: Attitudes and informational needs of patients and caregivers A Sharma, A Young, Y Carroll, H Darji, Y Li, BN Mandrell, MN Nelson, ... Pediatric Blood & Cancer 70 (6), e30319, 2023 | 3 | 2023 |
Patient and caregiver attitudes towards gene therapy for sickle cell disease: a need for partnership and education A Sharma, A Young, Y Carroll, B Mandrell, M Caples, J Gattuso, L Jerkins, ... Blood 138 (Supplement 1), 918-918, 2021 | 2 | 2021 |
Genomic Knowledge and Mistrust Among Families with Sickle Cell Disease J Boggs, L Johnson, R Acharya, M Caples, BN Mandrell Journal of Sickle Cell Disease 1 (Supplement_1), 2024 | | 2024 |
Parental Understanding of Their Child’s Germline Genomic Testing: Intent of Disclosure to Their Child and Family BN Mandrell, AK Blake, KMH Sharp, JS Gattuso, RB McGee, L Harrison, ... Journal of Personalized Medicine 13 (12), 1656, 2023 | | 2023 |
0864 Evolution of Sleep Symptoms over Time Among Youth with Craniopharyngioma K Hopper, B Mandrell, M Caples, D Hancock, T Merchant, M Wise, ... Sleep 46 (Supplement_1), A380-A381, 2023 | | 2023 |
Internalizing Symptoms and their Impact on Patient Reported Health-Related Quality of Life and Fatigue among Patients with Craniopharyngioma during Proton Radiation Therapy B Mandrell, Y Guo, Y Li, D Hancock, M Caples, J Ashford, T Merchant, ... | | 2022 |
0994 Assessment Of Sleep-wake And Circadian Rhythm Disruption In Children And Adolescents Diagnosed With Craniopharyngioma KN LaRosa, SJ Crowley, D Hancock, M Caples, TE Merchant, ... Sleep 43, A377-A378, 2020 | | 2020 |
0817 Predictors of Hypersomnia and Narcolepsy in Pediatric Craniopharyngioma KN LaRosa, V Crabtree, A Sykes, Z Lu, TE Merchant, MS Wise, ... Sleep 42 (Supplement_1), A327-A328, 2019 | | 2019 |
0808 Comparison of Actigraphy to Polysomnography in the Measurement of Nocturnal Sleep in Children with Craniopharyngioma KN LaRosa, K Niel, KL Klages, TE Merchant, MS Wise, S Witcraft, ... Sleep 42 (Supplement_1), A324-A325, 2019 | | 2019 |